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Please note: The General Public forum is open to view by everyone and to post by ALL REGISTERED USERS.
Are you about to Register? On the registration page, you will be invited to insert a forum name.
The forum name you use appears at the end of every message that you post on any of the forums.
We urge you to adopt a forum name so that your identity, and importantly that of your family and child, is not apparent to the whole world. When a child becomes a teenager, he/she will want to decide for him/herself whether it is generally known that he/she has a genetic condition.
To protect them, you simply need a forum name. Examples of usernames are first names followed by an initial for the surname, or something completely different, like ranger79
Individuals and Families, Medics and Researchers, Youth – under 25: You will need to register in order to view and to post on these forums. They are only open to registered users.
Only registered users are able to post on the forum. Click here to register.
| General Public | |||
|---|---|---|---|
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First General Public Forum This is the first General Public Forum which anyone can read, but only registered users can post here. : |
5 | 22 | |
| Individuals and Families | |||
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First Individuals and Families Forum This is the first Individuals and Families Forum. : |
3 | 12 | |
| Medical and Researchers | |||
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First Medical and Researchers Forum This is the first Medical and Researchers Forum : |
4 | 8 | |
| Youths - under 25 | |||
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Youths - under 25 Forum This is the first Youths - under 25 Forum : |
4 | 15 |