Key points throughout the day:
- Listen carefully to CGD patients
- Avoid making assumptions
- Identify the underlying cause behind symptoms
- Give immediate attention and swift treatment to patients with CGD
Bone Marrow Transplant in CGD
Sr. Helen Harvey, BMT CNS, Newcastle General Hospital
- BMT is a curative option with sufferers going on to lead a normal life with no restrictions.
- BMT is now possible with unrelated matched donors
- Post BMT, there seems to be improvement in previous problems such as lung function and bowel inflammation
- Patients and families need support for a long period, pre and post BMT
- Teenagers in particular need psychological support to enable them to cope with isolation.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2007 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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