The Trust's relationship with medical professionals is vital and we welcome your ideas for tailoring the site to your needs. This is why we have a button just for you. Please be supportive if a patient or family dealing with CGD asks you to refer to this site! It is such a rare condition that you are quite likely never to have come across it before.
CGD is serious and the alertness of the general medical community to it saves lives, especially with early diagnosis and intervention. GPs, nurses and hospital staff in many countries will turn first to this site to understand CGD, and the available treatments. We have a Short Guide to CGD for Medical Professionals written by medical professionals for medical professionals. It was compiled on behalf of the CGD Research Trust by Prof. D. Goldblatt, Dr. C. Cale and our CGD clinical nurse specialist Dept. of Immunology, Great Ormond St. Hospital. Please refer to the Care section of the site, which contains valuable information that has been carefully reviewed, in some cases authored, by top medical experts on CGD. You may also like to explore the Medical Research.
Immediate attention and swift treatment are vital in the treatment of patients with CGD. Please see Nurse Study Day. In the case of CGD it may be necessary to think 'outside' any usual protocols that your hospital may have concerning the use of anti-biotics.
We fund a dedicated CGD clinical psychology support service for CGD patients and their families. For more details, please phone 01725 517 977.
Some information is appropriate for you but not for the general visitor. There is a 'Medical and Researchers' forum.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2007 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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