Getting Involved can be great fun and very rewarding. And it means that we can continue to make a difference to people affected by CGD - through research, support and education.
Get involved and we can:-
- Fund vital research work into improved treatment and a cure for this rare, genetic bone marrow disorder. CGD is a ‘model’ condition for this work and progress should benefit many other inherited conditions.
- Fund our CGD specialist nurse.
- Fund our unique clinical psychology support service for patients and their families,
- Provide moral support, information and a point of contact for our members and families, through social events, newsletters and mailings.
- Spread knowledge about the condition and its treatment among medical professionals - many consultants have not heard of CGD, and even fewer GP’s!
- Hold workshops and fun days.
- Raise awareness among the general public.
CAN YOU ....
Fundraise almost without thinking?
Volunteer?
Encourage Company and Club support?
Start a local support group?
Whatever you choose to do, in a large or small way, it will make a difference.
Here’s a Huge THANK YOU to all of our supporters!
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2007 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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