The CGD Community
The CGD Community is a wonderful mixture of people: those with CGD and their families and friends, medical professionals, researchers, donors, Trust staff and volunteers, partner charities and many more. It is a powerful alliance. Each from a unique perspective, all of us are working towards common goals: better quality of life, treatments and cures for people with CGD and indirectly, other genetic conditions. Our new website builds on this precious foundation of mutual trust that has built up over the years.
We hope very soon to launch discussion forums on the site, intended to stimulate constructive discussion within a safe and sensitive environment, inspired by traditions of confidentiality. In coming weeks we'll try to establish what users really want, and how many separate discussions are practicable (most are likely to require a mediator). We'll work out how to make it easy for people to express their views without inhibition, but with respect. Some forums may be for specific groups, others will cross the boundaries. Tell us how you think it will work best.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2007 The Chronic Granulomatous Disorder (CGD) Research
Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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