Our information booklet 'CGD: A Guide for patients and Their Families' is also available by post. Please email rosemarie@cgdrt.co.uk if you would like a copy or several copies, so that you can give one to your doctor.
CGD – A guide for patients and families
Our guide provides an introduction and overview to CGD. It answers many of the questions asked at diagnosis and is a good source of reference at any time. It is widely used by families and medical professionals.
A5, 34 pages, published June 2003
Our Fact sheet section (see left) covers specific symptoms and different aspects of the condition.
But having a chronic conditon is not just about the medical disorder. FAQ's are often about living with CGD as much as about the condition itself.
For example, how do I encourage my child to eat a healthy diet? I have CGD - can I travel?
Here are two information sheets that will help answer those topics.
Information Sheet 1 – Food for Thought
This information sheet provides a brief introduction to food and CGD including dietary advice, food facts, recipes and on feeding children.
A4, 5 pages, published December 2003,reviewed 2008
Information Sheet 2 – Travel and CGD
Lots of people go on holiday or go travelling, particularly on their gap year between school and university. While you are deciding where to go, a number of questions may spring to mind if you are affected by CGD.
A4, 3 pages, published December 2003; reviewed 2008
Please let us know what other topics you would like covered by emailing your suggestion to editor@cgdrt.co.uk
All our downloads are free of charge. They are in PDF format which means you may need the free Adobe Reader software in order to view/print them downloaded from here.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2007 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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