Andrew started the original CGD support group back in 1986 soon after his son Daniel was diagnosed with the X-linked form of CGD. It was through this support group that Andrew first made contact with Paul Numan and others to become the founders of the CGD Research Trust charity. He has attended virtually every trustee meeting since then.
Andrew also has a nephew who successfully received a bone marrow transplant in 2002 with a sibling donor and is now deemed to be CGD free. Andrew's wife, Doretta, has traced CGD back through at least 3 generations of her family tree.
Andrew is an IT consultant and data analyst and gives the charity helpful advice on website, software and database issues. He is keen to ensure the charity continues in its search for a cure for CGD and to provide practical support to CGD sufferers and their families, including tackling the new issues which are appearing as the CGD population gets older.
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2007 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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