The CGD Research Trust is funding vital state of the art research at a time when Britain is a world leader in the treatment of genetic disorders. The charity also provides support to families, and information to anyone with an interest in CGD.
Why is research into CGD a high priority?
Understanding CGD and how gene therapy works may help many other serious diseases affecting the immune system, therefore helping many thousands of people. Understanding the mechanisms involved will lead to new treatments for the symptoms, such as painful inflammation or respiratory problems.
Why are our support services so important?
CGD is a chronic condition. At a time when health services are stretched, it is the people with long term conditions such as CGD who are overlooked in the provision of care. We fund dedicated nurse and clinical psychology support services that are a life-line to our families.
We have a track record of attracting generous donations, but we can always do more with more. Our major achievements to date are the fruits of expertise, goodwill and enthusiasm pooled from a broad spectrum of dedicated people – donors, doctors, nurses, researchers, CGD families, patrons, trustees, volunteers and fundraising supporters to name a few.
We started, and own the trademark of, the high profile and very successful Jeans for Genes Campaign. Jeans for Genes is expanding its activities and will be holding events year-round.
The Trust funds groundbreaking research at leading centres in the UK, Europe and the USA and our Medical Advisory Panel is composed of experts in a wide field of specialities. We take the utmost care to ensure that the precious funds you work so hard to give us are spent only on projects and research teams of the highest calibre.
People with CGD often remind us that their quality of life today is as important as finding a cure tomorrow. This new website is one part of a push to expand the services we offer to them and their families.
Can you help us do more? To see how, please click here
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2007 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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