The CGD Research Trust is funding vital state of the art research at a time when Britain is a world leader in the treatment of genetic disorders. The charity also provides support to families, and information to anyone with an interest in CGD.
Why research into CGD?
Understanding CGD and how gene therapy works gives hope to affected families and may help many other serious diseases affecting the immune system.
Understanding the mechanisms involved in CGD will lead to new treatments for the symptoms, such as painful inflammation or respiratory problems. Some of the research work we have funded has won recognition and more ££££’s from other funders. For example, a study by Dr Brahm Segal, Rosewell Park Cancer Institute, USA and his team won $2.2m to continue their work, with implications for conditions like cancer and diabetes as well as for CGD.
Making the most of our funds
The Trust funds groundbreaking research at leading centres in the UK, Europe and the USA and our Medical Advisory Panel is composed of experts in a wide field of specialities. We take the utmost care to ensure that the precious funds you work so hard to give us are spent only on projects and research teams of the highest calibre.
Why are our support services so important?
CGD is a chronic condition. Health services are stretched and it is often people with long term conditions such as CGD who are overlooked in the provision of care. We fund dedicated nurse and clinical psychology support services that are a life-line to our families.
Who helps us?
The charity benefits from the expertise, enthusiasm and goodwill of lots of people – donors, doctors, nurses, researchers, CGD families, patrons, trustees, volunteers and fundraising supporters. With this combined effort and perspective, we can direct our work, plan activity and propel progress in care and research.
Are there any other achievements?
We started, and own the trademark of, the high profile and very successful Jeans for Genes Campaign. Jeans for Genes is expanding its activities and will be holding events year-round.
Keeping in touch with need
People with CGD remind us that their quality of life today is as important as finding a cure tomorrow – and the more funds we have, the more we can work to improve things for them.
Can you help us do more? To see how, please click here
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2007 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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