Welcome to the CGD Research Trust website
NEWS FLASH
Swine Flu and CGD - The advice for the CGD Community concerning precautions against getting swine flu is the same as for the general population. You can best protect yourself/your family by: maintaining good basic hygiene, e.g. wash your hands frequently with soap and water and cleaning hard surfaces (such as kitchen worktops, door handles) frequently, using your normal cleaning product.
To see the government information leaflet on swine flu, please go to: www.dh.gov.uk/en/index.htm
For more information, please go to www.nhs.uk/pages.homepage.aspx
The CGD Research Trust is the world's leading specialist organisation involved with Chronic Granulomatous Disorder (formerly known as Chronic Granulomatous Disease), a rare immune deficiency.
What is CGD (Chronic Granulomatous Disorder)?
CGD is a rare and life-threatening genetic condition which could affect 8-10 people in a million of us. You are born with a faulty gene in your bone marrow, meaning your white blood cells cannot fight infections as they should. People with CGD have to take powerful antiobiotics and antifungals every day. But thanks to gifts from people like you, our understanding of CGD has hugely improved in recent years. Treatments including bone marrow transplants are increasingly successful. Although still in its infancy gene therapy offers real hope for the future with promising results from recent clinical trials.
We strive to create a better life for those living with CGD through support services for our families and through funding vital research to find improved treatments and a cure for those affected. Over the last 10 years more than £3.6 million has been invested into 39 research projects.
Chronic granulomatous disorder used to be known as chronic granulomatous disease; medical professionals and researchers still sometimes refer to it by this former title.
Whatever your interest in CGD, our website aims to help you.
Are you/is your family affected by CGD?
Are you a medical professional, scientist or student?
Can you help us fundraise and raise awareness?
Do you have a general interest?
We value your visit to our website - it gives us the chance to help you. And it gives you the chance to help us!
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2007 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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