Welcome to the CGD Research Trust website
We have recently changed our charity name to CGD Society. We are currently developing our new website and hope to go live on 1st February 2012.
The CGD Research Trust is the world's leading specialist organisation involved with Chronic Granulomatous Disorder (formerly known as Chronic Granulomatous Disease), a rare immune deficiency. Whatever your interest in Chronic Granulomatous Disorder, our website aims to help you.
Adult nursing service from 2012
CGDS is sorry to announce that there will be a break in the adult CGD nursing services from January 2012.
CGDS now wishes to move the nursing service from Manchester to London and we will be working towards establishing an equivalent nursing service as soon as possible in the New Year.
We would like to thank Marie for all her wonderful, valuable work in helping CGD patients over the last four years and wish her every success in her future career.
In the interim period, the arrangements for out of hours service/Marie’s holiday apply:
- Please contact your local or specialist care team
- In the event that you cannot make contact with the local team, please phone Rosemarie on 0207 199 3199
This is a wonderful opportunity to raise funds for us! Take part in this year's event and soak up what should be an incredible atmosphere in this Olympic year! Please contact the CGDS office to book your place now.
What is CGD (Chronic Granulomatous Disorder)?
CGD is a rare and life-threatening genetic condition which could affect 8-10 people in a million of us. You are born with a faulty gene in your bone marrow, meaning your white blood cells cannot fight infections as they should. People with CGD have to take powerful antiobiotics and antifungals every day. But thanks to gifts from people like you, our understanding of CGD has hugely improved in recent years. Treatments including bone marrow transplants are increasingly successful. Although still in its infancy gene therapy offers real hope for the future with promising results from recent clinical trials.
We strive to create a better life for those living with CGD through support services for our families and through funding vital research to find improved treatments and a cure for those affected. Over the last 12-13 years more than £3.8 million has been invested into 42 research projects.
Chronic granulomatous disorder used to be known as chronic granulomatous disease; medical professionals and researchers still sometimes refer to it by this former title.
Are you/is your family affected by Chronic Granulomatous Disorder?
Are you a medical professional, scientist or student?
Do you have a general interest?Or perhaps you want to help - can you fundraise and raise awareness?
We value your visit to our website - it gives us the chance to help you. And it gives you the chance to help us!
IMPORTANT NOTE :
The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.
© 2001-2007 The Chronic Granulomatous Disorder (CGD) Research Trust
Registered Charity No. 1003425 email:cgd@cgdrt.co.uk
The CGD Research Trust is a member of the Association of Medical Research Charities (AMRC), the Genetic Interest Group (GiG) and an associate member of the International Patient Organisation of Primary Immunodeficiencies (IPOPI)
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